(A support forum set up by visitors to our site - as mentioned earlier on this site. Look under 'documents' for an article in the Observer Magazine (21/5/06) featuring this site and our own).
(VEDA - Vestibular Disorders Association. Emma is a member and their website is full of advice and information).
(Emma has set up this support group in Newcastle upon Tyne).
(An excellent website which explains the problems with "Invisible illnesses").
(A website by Neurocom International - gives excellent outline of balance problems and what can go wrong - see "patient Information").
(An NHS video featuring the patient's perspective).
(The British Association of Behavioural and Cognitive Psychotherapies).
(Excellent site - very informative - click on 'Personal Stories' for insightful and emotional stories from people with vestibular disorders).
(Goes through the emotions experienced when suffering from a Vestibular disorder).
(Explanation of the stages people go through when faced with a chronic disease or condition).
(A UK Balance Interest Group set up by the British Society of Audiology - some interesting information on VRT, diagnostic testing and claiming disability allowance).
(Info from Dr Hain at the Chicago Balance Centre - v good).
(Information about all kinds of ear conditions).
(Connecting people with accredited Counsellors/CBT Therapists in the UK).
Books that may be of use...
• "Feeling Dizzy" by Brian W Blakeley and Mary-Ellen Siegel (1997) - very cheap and a good read if you are new to the world of dizziness.
• "Why me, why this, why now?" by Robin Norwood (1995) - not related to dizziness and not for people who don't like "deep" books!! Emma read it and it helped her - it deals with why we experience adversity and bad patches in life.
• "Dizzy Spell" by Gillian Gabrielle Barnett. Gillian is an online "dizzy" friend of ours and this book sounds like an excellent 'patient's perspective' when it comes to living with a vestibular disorder. Who better to write a book about this than someone who suffered Labyrinthitis for over 2 years, as Gillian did. Buy from:
OR for UK people the following is the best site to buy from (book is about 5 pounds inc postage!):
• "Invisible Illnesses and Disabilities" by Sharon Smith-Merritt. A touching insight into one woman's bravery after sustaining inner ear damage and other problems after a car accident.
Can be found at: http://www.authorhouse.com/BookStore/ItemDetail~bookid~12207.aspx/
For contact details for the UK's two Dizzy Support Groups see:
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