(A support forum set up by visitors to our site - as mentioned earlier on this site. Look under 'documents' for an article in the Observer Magazine (21/5/06) featuring this site and our own).
http://www.vestibular.org
(VEDA - Vestibular Disorders Association.
Emma is a member and their website is full of advice and information).
(A website set up by two BPPV sufferers.
Very informative and like ours, gives a patient's perspective. Although
based on BPPV, much of the information applies to Labyrinthitis too).
(An excellent website which explains the
problems with "Invisible illnesses").
(A website by Neurocom International -
gives excellent outline of balance problems and what can go wrong - see
"patient Information").
(The British Association of Behavioural
and Cognitive Psychotherapies).
http://www.balance-and-dizziness.com/
(Excellent site - very informative - click
on 'Personal Stories' for insightful and emotional stories from people
with vestibular disorders).
http://www.thedizzylounge.com/
(An online support group for people with
vestibular disorders).
http://www.theblackriver.net/wobbler/wobblerpyschological.html
(Goes through the emotions experienced
when suffering from a Vestibular disorder).
http://www.theblackriver.net/stages.html
(Explanation of the stages people go through when faced with a chronic
disease or condition).
http://health.groups.yahoo.com/group/labyrinthitissupport/
(A Yahoo support group for UK Labyrinthitis
sufferers).
http://health.groups.yahoo.com/group/dizzymates/
(An active support group for dizzy people
- with over 100 members - they also have a sister site "Steadymates" for
friends and family of dizzy people - a very good idea we think).
http://www.balancenetwork.org/
(A UK Balance Interest Group
set up by the British Society of Audiology - some interesting information
on VRT, diagnostic testing and claiming disability allowance).
http://www.dizziness-and-balance.com/
(Info from Dr Hain at the Chicago
Balance Centre - v good).
(Information about all kinds of ear conditions).
Books that may be of use...
• "Feeling Dizzy" by Brian W Blakeley and Mary-Ellen Siegel (1997) - very cheap and a good read if you are new to the world of dizziness.
• "Why me, why this, why now?" by Robin Norwood (1995) - not related to dizziness and not for people who don't like "deep" books!! Emma read it and it helped her - it deals with why we experience adversity and bad patches in life.
• "Dizzy Spell" by Gillian Gabrielle Barnett. Gillian is an online "dizzy" friend of ours and this book sounds like an excellent 'patient's perspective' when it comes to living with a vestibular disorder. Who better to write a book about this than someone who suffered Labyrinthitis for over 2 years, as Gillian did. Buy from:
http://www.iuniverse.com/bookstore/
OR for UK people the following is the best site to buy from (book is about 5 pounds inc postage!):
• "Invisible Illnesses and Disabilities" by Sharon Smith-Merritt. A touching insight into one woman's bravery after sustaining inner ear damage and other problems after a car accident. Can be found at: http://www.authorhouse.com/BookStore/ItemDetail~bookid~12207.aspx/ For contact details for the UK's
only Dizzy Support Group see:
How to Cope
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